Thursday, November 19, 2020

November Challenge Post #19: A Difficult Time In My Life

 


In the summer of 2005, I began having severe pain in my left shoulder. Moving it hurt. Lying on it hurt, too. By the time school started, I was having trouble moving it to dress myself. The pain was intense. If I bumped my arm in any way, a white-hot knife shot through my shoulder and almost made me collapse.

At some point I saw a doctor and was diagnosed with a possible torn rotator cuff. At some later point, the diagnosis changed, and I was re-diagnosed with adhesive capsulitis, or frozen shoulder. I was sent to physical therapy for a little while, but no gains were made, and the pain got progressively worse. Nothing was helping, and I was trying very hard to teach every day and be a mother and a wife (and a new blogger) and survive this pain, which was relentless.

I was prescribed Vicodin, but it wasn't helping. Like my father did, I have a very high tolerance level for narcotics. One martini gets me drunk, but two Vicodin do nothing but make me feel a bit sleepy. After a day of Vicodin, the next day they may as well be Skittles. I was sent to a pain management doctor who gave me a pain block that did absolutely nothing. 

Physical therapy was deemed pointless. I was unable to move my arm, frantic with pain, and trying to teach and serve on the committee to choose new textbooks for the English departments for the entire district. I couldn't even drive myself to and from school. I was exhausted.

The doctor decided to put me on oxycontin. And then my life completely fell apart in little pieces, bit by bit.

I have little to no memory of my life at that point. I would take prescription strength ibuprofen during the day so that I could teach. The moment I got home, I would put on my pajamas, take my oxycontin, and hit the couch. I have no idea if I ever made meals, ate them, or what. I mean, I'm sure I must have retained some semblance of my normal life, but I don't remember it. When I ask my husband about it, he says, "We managed just fine." Jared and Sam were busy with their own lives, working and going to school, but I know it affected them, too. They don't say anything about it, either. 

I don't remember Thanksgiving. I don't remember Christmas shopping. I know I was far too unwell to host my usual big family Christmas Eve. I don't remember Christmas. I was a wreck. That drug destroyed every system of my body. Narcotics are notorious for disrupting your normal digestive system's rhythm, and mine was simply nonfunctioning. I was merely existing to work and then come home and take a pill to quell the pain. I do remember at one point telling Rick that I couldn't go on, that this was no Life anymore. That I didn't recognize my life and I couldn't do it one more day.  I remember him sitting next to me on the couch and pleading with me not to give up.

Finally, my shoulder pain began to ease up. I don't remember if it was in February or March or when. I decided to take myself off of the oxycontin, so I just stopped taking it one day. A few hours later I was nauseated and shaking. I felt jumpy and over-caffeinated, and my heart was racing. I don't remember how it came about, but I called the doctor's office and told the nurse I had stopped taking the drug that day. I was told that what I had done was dangerous, and that I needed to take it immediately and have someone drive me to the office. Somehow I got there and was given a step-down schedule to wean myself off the oxycontin. I had no idea that I was, for all intents and purposes, an addict. My brain was addicted even if I, Nance, wasn't. I was angry and confused. 

I wanted my life back now. I didn't want to wait.

I don't remember the step-down, how long it took. Huge chunks of my memory are just Gone. I don't know if they are a biological casualty of oxycontin, or an emotional casualty of my psyche protecting itself. But it's all gone.

And I'm still a bit angry about that.

I got frozen shoulder again in 2008, in the other shoulder. They misdiagnosed it again as a torn rotator cuff, and they actually had me in surgery before they discovered their mistake. That time it was a much less severe case, and I took nothing stronger than naproxyn. 

Obviously, this was a terribly difficult time in my life, and difficult to share. Thank you for making me feel like I can, here, with you.

I hope you feel as if you can share a difficult time with me, either here or via my email, which you can find in my sidebar.

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34 comments:

  1. Yikes!! That is scary shit. Glad you are ok now. I had percocet once and I reacted like I was on speed!!

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    1. Vera--It was scary. And a long, long time ago. Glad I'm okay, too.

      Percocet is an odd drug. They tried that, too, and it made me immediately nauseated to the point of vomiting. Your reaction is odd! Wow.

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  2. I'm sorry that you had to go through that. I had a torn meniscus and went to the E.R. when in California visiting my daughter. They gave me Oxycontin. I took one to get home on the plane without being in excruciating pain, and one when I came home and went to bed. That was enough for me. Luckily, physical therapy has helped me heal without surgery (yet).
    I'm glad that you got off of that narcotic. It sounds like your life is much better now for it.

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    1. Minerva--I am a huge believer in physical therapy. I've been in PT many times, and it's so valuable.

      My husband was prescribed Oxycontin after his back surgery and I was terrified. I didn't want him to use it. Like you, he used it twice and that was it.

      Thanks for your expression of kindness. I appreciate it.

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  3. I'm so sorry you had to go through that Nance, sure glad it's behind you. My husband was in a bad construction accident back in 98 and took oxycontin for years. He had a whole different personality on that stuff. Like you, one day he went cold turkey, but he flat out refused to do it under a doctor's care. I honestly wasn't sure if he was going to make it. He was in bed for a week and the whole ordeal was a total nightmare. Thankfully he did finally get through it, but it's something neither of us will ever forget.

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    1. Martha--Thank you. Me, too.

      I can't imagine taking it for years. Thank goodness your husband decided to stop. It must have been a terrible ordeal for you both. I remember just that half of a day before I called the doctor being difficult. As I said, the rest is gone.

      I'm so glad it's out of your lives.

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  4. Anonymous7:18 PM

    As everyone knows by now, opioid addiction is epidemic in America. Your experience pinpoints the source of the problem: physicians who over-prescribe as well as pharmaceutical salesmen/women on commission. Your symptoms were exactly like what I experienced, except I was diagnosed correctly with frozen shoulder. I was given cortizone shots at the source of the pain-- immediate relief and never had another problem. Only side effect was cortizone made my sugars rise temporarily - interesting that was not suggested as an option for you.
    P.S. I feel mildly intimidated writing to an English teacher. Don't judge--I've been out of school for 60 years. Enjoy your Blog very much.

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    1. Eileen--The pain block that I mentioned could very well have been cortisone. Forgive my poor memory. It had no therapeutic benefit for me at all. Within a day, I was back in excruciating pain. The doctor said he could not try another one for three months. The oxycontin was the next option.

      I'm so glad you're enjoying my blog. Please don't hesitate to comment here just because I'm a retired English teacher. My Comments section is a casual, welcoming place where we all just chat. No one, including me, harps on typos or the occasional error. I don't correct the grammar of friends in conversation or look for mistakes in the texts and emails of friends. I'm always so happy for their presence in my life.

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    2. My experience with frozen shoulder was similar to Eileen's - the cortizone worked. Eileen, I am an ex English teacher too, and I make lots of mistakes when I blog. Not to worry, as they used to say.

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  5. It makes me angry to read of your experience with narcotics. Doctors didn't fully warn patients of their addictive nature not all that long ago...at least I hope that has changed in recent years. My sister-in-law got caught in that trap the same way you did only it ended turning her into killing her. When her doctor tried to get her off it, she doctor shopped in different counties to get the drug, bought it on the streets too and eventually she O.D. on oxycontin. More than once, even went to jail and several treatment centers. The whole thing put her family through hell for several years and before the shoulder pain she was a norm mother and wife, living a normal life.

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    1. Jean--The story of your sister-in-law is a terrible tragedy. I'm so, so sorry. It illustrates perfectly the terrible nature of that drug.

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  6. Oh, dear!!! I cannot even begin to imagine how horrible that must have been: the chronic pain, having it misdiagnosed, and the unintentional addiction to the oxycontin which you couldn't have know was so addictive. I don't know how you managed teaching during all those months!

    I have had my share of surgeries (one right after I went to Spain and my face hit the windshield in a nasty car accident; 150 stitches and a couple of minor plastic surgery operations later on), but truly nothing like the pain you went through. All I can say is, I am glad you had Rick and the boys to see you through the darkest days. Thank goodness you were able to get off that horrible oxycontin. Reading other comments here have put the fear of God into me about that stuff!

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    1. Ortizzle--I have no idea, either. It's astonishing how we gather ourselves and go on.

      I had no idea about your awful car accident! And right after you moved to Spain all alone? How on earth did you summon the courage to stay and not run right back home? You are a Force! This Comments section is full of strong women, let me tell you! I am Impressed.

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  7. I’ve been thinking a lot recently about the poem, Richard Corey. Especially this line,

    So on we worked, and waited for the light,
    And went without the meat, and cursed the bread;

    I think there have been too many days in my life where I just slogged through things. Too tired, too sore, too stressed. Just crash on the couch and do it all again the next day. Undefined physical pain is a horrible disrupter to a happy, productive life. I’m glad that is all behind you now.

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    1. DitBotF--What a superlative parallel you've brought here! That poem, Richard Cory, by Edwin Arlington Robinson, is deceptively simple, but truly is so much more. Thank you for mentioning it here, and in such a great context. Here it is, Readers, in its entirety:

      Richard Cory

      Whenever Richard Cory went down town,
      We people on the pavement looked at him:
      He was a gentleman from sole to crown,
      Clean favored, and imperially slim.

      And he was always quietly arrayed,
      And he was always human when he talked;
      But still he fluttered pulses when he said,
      "Good-morning," and he glittered when he walked.

      And he was rich—yes, richer than a king—
      And admirably schooled in every grace:
      In fine, we thought that he was everything
      To make us wish that we were in his place.

      So on we worked, and waited for the light,
      And went without the meat, and cursed the bread;
      And Richard Cory, one calm summer night,
      Went home and put a bullet through his head.

      ----

      We never know what other people are going through, do we? Not only is chronic physical pain a terrible burden, so is chronic emotional pain.

      Take care of yourself, friend. And I will, too.Thank you.

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  8. Oh Nance, how horrible! I have heard how horribly painful frozen shoulder is. It reminds me of the rheumatoid arthritis that struck me in 2014, and how much that hurt. I remember truly fearing my wrist would snap while brushing my hair, crying at the thought of walking across the grocery store, not being able to hold a pen to write my Christmas cards, on and on. If my doctor had offered me Oxy, I would have taken it. What I did get was prednisone, which I felt like saved my life. I could not stay on it for long, it’s a dangerous drug, can cause diabetes and blindness and other nasty things. I also remember you reaching out to me when I was going through it to offer support, which I appreciated so very much.

    My daughter had surgery this year, and the doctor gave her Oxy for her recovery. I will admit to being terrified that she would become addicted. She is an adult, and I could not convince her to stick with ibuprofen or anything like that. She took it for 5 or 6 days, not enough time that she had to taper off, thankfully. She is fine. Thank god.

    I am so glad that you came through all of that, and that you decided to share your story here. How horrible and difficult that was for you, for Rick, for your wonderful sons. Ugh.

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    1. J--Thank you. I think what I remember of it is probably plenty, you know?

      I'm surprised at how often doctors still prescribe oxycontin. I wonder if it's because they have to send people home so soon after surgery. I'd be scared to prescribe it. I'm glad Maya didn't have any problems. Rick was prescribed it as well after his back surgery, and you can imagine my reaction and stress. He only took it twice, and I soon took the remainder to the pill depository at the local Walgreens.

      I have a hard time realizing it has been that many years since your RA diagnosis. I'm sure it seems like forever for you, living it day by day, but wow! six years ago. You and I have been buddies for a while, haven't we?

      And to think, we've only met IRL once. So far. ;)

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  9. Wow .. your are so transparent and honest. I can't imagine how many people will benefit from reading your story . I am so sorry you had to go through that. I wish you only the very very best in the future . I am so glad your family is healed too.
    What is odd, is that the photo you show ? Well I took a similar one today on a hike . I will send it to you...

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    1. kathy b--It was years and years ago, so the healing has already taken place, and my future is bright and full of gratitude.

      I don't see any value in being anything but honest and transparent here. I know you're authentic at your site as well. I think all of the blogs I read are written honestly. That's why I read them. And why I don't bother with social media in general, which seems to show only a more gilded version of people's lives.

      You are one busy lady over there in Wisconsin! You put me to shame. You've certainly found ways to stay occupied and outdoorsy.

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  10. Wow. I was always told to never stop taking my meds cold turkey. For the very same reason; it's dangerous in so many ways.

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    1. Anni--Either I wasn't told, which was likely, or I didn't remember being told. Also likely.

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  11. Dee--Thank you, and I so appreciate your support. Sometimes, I can't believe it's part of my story.

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  12. What a horrible time for you! I injured my shoulder back in 2007 or so (carrying a baby in a baby carrier of all things) & babied it for so long that I ended up with what they called frozen shoulder. But it wasn't nearly as bad as your case, and I did end up having to have surgery (torn labrum). I don't remember if I was prescribed oxycontin then, or after either of my two hip surgeries, but I do know that they drugs I took were only beneficial if they helped me sleep through the pain, and that I stopped taking them as soon as I could.

    But I do have a really hard oxy story. My mother was diagnosed with kidney cancer in 2004. She had a kidney removed, but they weren't able to get all of the cancer, so it ended up spreading. She died in March 2005. My brother COULD NOT handle it. At all. He started taking her oxycontin while she was still alive. He was a pharmacist, so he stole it from his pharmacy. When the state came to do an audit he was terrified, got in his car & drove & drove, on the phone with his terrified wife, threatening to kill himself. My dad called me to let me know & it was the most bizarre tale I had ever heard. If you knew my brother you would have been ASTONISHED as I was. I had no idea. At all. They talked him down off of that ledge, he went into treatment, and got another job as a pharmacist (there is such a need for pharmacists & this is such a huge problem, that they actually have a program in place to help them through addiction & get another job), then got caught taking something else from the pharmacy (not a narcotic - he never told me what it was). So now he's a long haul truck driver. I have no idea if he's "clean." They do have drug testing for his CDL license, so I have to hope so, but since I didn't know the first time...

    Anyway, that stuff is no joke & I'm glad you were able to make it through that time in your life!

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    1. Bug--Oh, Dana, what a sad and terrible story about your brother. How frightening for him to have risked everything and to see no way out. And how sad and terrifying for your family, especially his wife. And now, he's lost his career. I'm glad he has a job that requires testing, and I share your hope that he's passing them honestly and is sober.

      Frozen shoulder is such an ideopathic syndrome. It can be the result of injury, surgery, or merely come upon as a weird immune system blip. I had no injury or surgery, but my immune system has always been low and, at times, compromised by my migraine meds.

      I'm glad I made it through, too. Thanks for your kind words and for sharing here.

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  13. This sounds completely harrowing. I'm glad you made it through, and even if you lost some memories, you're here to make new ones. Thank you for sharing, and know that I for one would miss you terribly if I couldn't count on "talking" to you sometimes. xoxo

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    1. Bridget--I'm grateful for my life since then, too. You've framed things beautifully: I am on the other side making new memories that are good ones, happy ones, and grateful ones.

      I'm so glad to be here talking with you, as well as over at your place, too. Thank you. XO

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  14. It is sad that our trust in the medical profession is so often misplaced. I am impressed by your story and so glad you came through.
    My most difficult time was my heart surgery - blogged about it at A Few Reflections on Being Full of Holes. There was a day in there when I came so, so close to just giving up.

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    1. Mary--Thank you. I'm glad, too.

      I remember your posts. Recovery from a major surgery like that is so slow and tiring. You feel so unlike yourself, and you can't see the finish line. And if you have to make major lifestyle changes, you, in your beaten state, start wondering if it's at all worth it. It's exhausting.

      I know I'm just one person of the many who are glad that you decided to stay in the fight. Thanks for being here, too. I love seeing you in Comments.

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  15. Oh, Nance, what a terrible time for you and your family. So glad you were able to recover. Thanks for sharing this story as it is a very informative warning about what drugs can do.
    Stay safe!

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    1. Ellen D--Yes, it was. And I'm glad it's over with very little real lasting effect. You take care as well.

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  16. That is just a lousy thing to happen. All of it, and yet you survived your unintended addiction. I'm glad you were strong enough to get yourself back to square one, but the fact that you had to do so is infuriating to the nth degree.

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    1. Ally Bean--It angers me still, but I've had to let a lot of the more active anger go. I was so uninformed, and I have to think the prescribers were, to a large degree, as well. I'm grateful that I was able to avoid a worse fate than so many others. Thank you for your understanding.

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  17. Nance, I really appreciate you sharing this very tough and personal ordeal with us.
    I've always known/heard about horror stories where regular people can turn into addicts overnight with some of these drugs; in your case, the drug was necessary, and the addiction was not intended. It's so very sad to think that a LOT of people spend their entire lives in this state.

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    1. Suz--Thank you. It wasn't an easy thing to do.

      As you said, my addiction was purely unintended and a complete surprise to me. I had no idea that sort of thing was possible. Now, with opiate addiction running rampant in our state, I'm grateful that I was one of the lucky ones who was able to stop the drug and stay off it. The transient nature of frozen shoulder helped, too.

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Oh, thank you for joining the fray!

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