Goodbye, August. You Can Show Yourself Out

 

Goodbye, August. Be on your way and don't give September any ideas, unless it's for the beautiful blue skies, voluptuous clouds, and refreshing temperatures you've left as parting gifts. Other than that, take your leave and all your lousy vibes with you.

I've been struggling with a mystery condition for a while now. After any exertion my muscles suddenly become very weak. I start losing my balance; my feet will scuff the ground when I walk, causing me to trip, then fall. Sometimes, I can sense it happening; other times, I have no warning at all. My arms have no strength, and my hands shake at times with tremors. I cannot carry anything of much heft, and there are times I can't steadily put a drink to my lips. As you can no doubt guess, this has put an end to my daily walks; I haven't been able to take one for a month. 

I miss them more than you could ever imagine. And I am so very tired so much of the time.

This is eerily reminiscent of my Vitamin D deficiency in 2017, except that I've been supplementing D religiously since then. Obviously, these symptoms prompted a visit to my primary care physician, who ordered some labs and a visit with my neurologist. Her initial diagnosis is that my very high dose of Topamax for migraine prevention, that I've been on for twenty years, might now be just too high for my tolerance at my age. "I worry that we might be doing this to you, not a disease process," she said. My dosage of Topamax is extremely high--higher than what is usually recommended--in order to control my migraines. My neurologist--actually his NP--ordered more labs and stepped down my Topamax as a possible solution. Another possible diagnosis is myasthenia gravis; unfortunately, there is no definitive test for it, only markers to look for or rule it out in a big process of elimination. But my initial round of labs looked pretty good, at least from what I saw and could figure out on my own.

And, as is always the case it seems, I don't go back for a follow-up with my actual neurologist until mid-September after new labs are done next week. Sigh.

As so many of you know, Patience is Not My Gift. I'm angry and annoyed that I'm so limited. And that now there is so much more burden placed on Rick. Just running the vacuum can put me out of commission for an hour or more. He escorts me on short little walks in case I tire and begin to show signs of scuffing. Spending part of a day with Theo--holding him, playing on the floor, being active with him, a Very Busy toddler--makes me incredibly tired and sore, but that will always, always be worth it. 

In other news, August marks yet another year for Dept. of Nance. I've been writing here for twenty years now! It's astonishing, but even more astonishing is the number of you who have been here for so many of those anniversaries. Thank you, and a special Thank You to my Faithful Commenters, who engage in and encourage such a lively, witty, and intelligent discussion here. You're the best on the Internet, no doubt about it.

I'll write a more celebratory post soon, but I wanted to share this news with you, my friends and virtual support group. Thank you for being here, and thank you for writing over at your places. It's a joy to start my day with you every single morning.