It will be a little while before I can get back to writing here. Thanks for your patience. Things have been, in a word, Shitful.
I hope to see you soon.
Updated
I realized later that this was a crummy and selfish post, and I'm sorry. I'm overwhelmed and not myself. It's not my intention to be dramatic or cryptic, and I can see how this can read as both.
In brief: Dr. B gave me a steroid blast in an effort to ease the pain I am in daily. It didn't work. What it did do--and I was fully aware of this possibility--was to give me a sleepless night, and that was all it took to break me down. I'm in a bad place right now, and I need some time. It's hard to face that this is my Life, and that no amount of fighting is going to make it different for me.
Again, I apologize for the original post. You deserve better. And I know better.
Dearest Nance,
ReplyDeleteThinking of you and sending a huge virtual hug your way. XXOO
Ortizzle
This sure doesn't sound good. Sending you good thoughts, positive vibes, and big hugs!
ReplyDeleteOh Nance! Please know that you are in my thoughts! I can try an interpretive dance to appease the gods of health, but it may not work. :( Let me know if there is anything I can do to help! I am not working and have LOADS of free time to do anything needed. I know you have the support of your family, but your blog friends are here too!
ReplyDeleteOh, I'm so sorry, I have been so happy to have discovered your blog. Fervent good wishes for healing and comfort.
ReplyDeleteOh Nance, I'm so sorry to hear that things are shitful. Here's hoping that they un-shittify soon. xo
ReplyDeleteCRAP. I hope things straighten out soon!
ReplyDeleteOh, nuts, So sorry to hear that. Seeing a new post from you is always a high point in my day - but this post makes me sad. Hope you feel better soon. xo
ReplyDeleteOh no, Nance. Hoping for the best possible outcome for whatever you're going through. xx
ReplyDeleteOh crud, that sounds terrible. I’m thinking of you.
ReplyDeleteOh dear. I am so sorry to hear this. Please take all the time you need. Sleepless nights can be the straw that breaks the camel’s back. I hope the doctor can come up with another solution to manage your symptoms. Being on steroids is so God awful!!
ReplyDeleteNo apologies needed. Take care of yourself, Nance.
ReplyDeleteI'm thinking of you and hoping for the pain to subside. Take care.
ReplyDeleteThanks for your update to let us know what was going on with you, Nance, although I think we all sort of knew it was to do with your recent EB/ME diagnosis. But let's be clear: your original notification was not a crummy and selfish post at all!! —It was a very discreet notice to simply explain in general terms why you had not posted on your blog. The only person who 'deserves better' is YOU, my dear!
ReplyDeleteI am so sorry about all the pain caused by the steroids! A friend of mine who has taken heavy doses of steroids told me that they can sometimes be useful but they are also notorious for having a treacherous side as well, as you have sadly experienced. Everything you have said about your doctor so far indicates to me that he is very thorough and trying everything he knows to alleviate your symptoms as quickly as possible, and that, sadly, some possible remedies can have the negative outcome that you have experienced. It's a journey of trial and error with no real predictable outcomes, which has to be immensely frustrating!
All of that said, while "this is your Life" I would like to think that there is hope for finding a way to keep it manageable going forward, using trial and error methods. From what I have read about EB/ME in the link you posted in October, it's complicated for sure, and each person's experience seems to be unique. Maybe you can find EB/ME support groups online in addition to everything your doctor is doing to help you. (You've likely already thought of that as well.)
Meanwhile... hope you get over the horrible steroid experience soon. For what it's worth, Nance, keep in mind that you have a huge support group here on your blog. We are legion and we are always here for you. XXOO
Oh, I’m so sorry. Pain is one of the worst things to deal with. I hope you feel better soon. Mary
ReplyDeleteDamn - I so wish that injection would've helped. Lost sleep makes my head feel fuzzy and the days long and tiresome. Sorry this is happening to you.
ReplyDeleteSorry to hear. Take your time and take care of yourself.
ReplyDeleteOh, don't feel you have to apologize! Sometime the last straw catches up by surprise. I hope today is better.
ReplyDeleteMisery. You should not feel that the first bit is something for which you need to apologize. Your large and caring group of readers have all had days of doom. I am hoping you feel better soon. Look after yourself, love. You deserve the best.
ReplyDeleteI'm so sorry, Nance. I hope things improve for you soon.
ReplyDeleteOh, Nance, I really hate reading this update. I'm so very sorry. Please don't feel obligated to update us but know that we are here for you as best we can be.
ReplyDeleteI hope you got some sleep last night. Not sleeping is the absolute worst and makes everything else worse as well.
ReplyDeleteOh, friend. I just left a comment on your medication post, and here you are struggling with pain. I’ve had to do a steroid push twice in the past year, so I completely understand the sleepless nights they bring.
ReplyDeleteListen, you do not owe us an explanation. Pain is a bitch. Feel better soon—sending you so much love.
Love you dear Nance, and am wishing like hell for things to get better for you!
ReplyDeleteSending so much love and hoping things turn around quickly, dear friend <3.
ReplyDeleteMy friends--Thank you all so much for your infinite kindness and support. As I have always said--and will continue to--you are The Best.
ReplyDeleteI am sleeping better now. I am learning to rest more and better during the day. I am trying to Let Go--of expectations, of guilt, and of disappointment. I'm trying to think of what I would tell a friend who was dealing with all of this and tell it to myself.
Thank you for being here. XOXO
<3 Wise words. Be as kind to yourself as you would be to a dear friend. Heck, be as kind to yourself as you would be to a stranger at the grocery store. I’m glad that you are sleeping better.
DeleteGiving yourself grace is the best thing you can do! Expectations are a bitch when your body has decided to stage a resistance. Hoping that as the days go by, you are coping and feeling better, bit by bit. Much love!
DeleteTake care of yourself. That's the most important thing.
DeleteNance, I'm so happy to read this update. Grace and wise words to aspire to can make a world of difference. That's not true every minute or even every day but definitely most of the time overall. Sending you continued love and hugs, my friend.
DeleteOh, Nance. It can be so hard when there doesn't seem to be an end in sight. You'll get through this! In the meantime, take the time you need. We'll be here when you get back.
ReplyDeleteI'm so very sorry about the shitful experience you're dealing with. I pray that this isn't forever, that you will be on the other side of it soon.. XO
ReplyDeleteCheering from the cheap seats. Sending virtual hugs and a lot of love.
ReplyDeleteDear Nance,
ReplyDeleteI'm sorry that you are having such a bad time that this is still your last post to be published. I hope with lots of rest and delegating you may still enjoy a happy Thanksgiving.
Just stopping by to wish you a Happy Thanksgiving, Nance. I've been thinking about you since your last post, but especially today. I know today was a lot for you. I hope you are feeling better and just doing what's best for you right now. I know how difficult it is when life just knocks you upside the head out of nowhere. Big hugs to you, my friend.
ReplyDeleteThank you, my friends. Your continued support and many kindnesses mean the world to me. I'm figuring this out more and more, which is the best way to fight back at it. That's always my way--to be bullish and not let anything get the very best of me.
ReplyDeleteYou'll hear more from me soon, I promise. XO